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11-04-2012, 02:55 PM
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#31
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Senior Member
Join Date: Jul 2011
Location: TN
Posts: 10,242
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Re: Send good vibes
Wow, gone camping for a couple of days and look what I miss! Sorry to hear it Jamie (not sure he's gonna read any of this for awhile though). I'm on board with trying to help however we can. Wow, this sounds pretty dang serious.
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11-04-2012, 08:17 PM
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#32
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Senior Member
Join Date: Jun 2012
Posts: 100
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Re: Send good vibes
Dang...prayers going out. Been gone off site for a couple of weeks and missed a lot apparently.
__________________
Harold Grissom - 2005 Quigley Ford E-350, 6.0 Turbo Diesel.
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11-05-2012, 08:08 AM
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#33
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Senior Member
Join Date: Aug 2010
Location: Taylor, Mississippi
Posts: 1,648
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Re: Send good vibes
Monday morning update... Jamie is still doing his part. It is a heartbreaker that Suzann can't fix him all by herself.
"Dear friends. Jamie is still very sick and I need help. Please share this with anyone who might be able to help. I am working on a rare disease lead called Hemophagocytosis syndrome. It is mostly in kids but adults might have it too. It may be virally mediated. I am looking for successful treatment protocols. Any good researchers out there would be really helpful. One hallmark sign is the very high ferritin level. Over 10,000. His was 33,000. Also look into HLH too. Thanks. Much love. Your prayers are helping."
__________________
'95 SMB E350 Quigley 7.3
https://www.taylorarts.com
... If you have to ask, you'll never understand...
"... torpedo'd, because we don't generally cotton to bullshit around here." -jage
"... do they ooch apart in the night?" -Dia
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11-05-2012, 08:42 AM
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#34
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Site Team
Join Date: May 2007
Location: Southern New Mexico
Posts: 10,179
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Re: Send good vibes
I wish I knew something, anything, that I could do to help. Good thoughts headed their way.
Herb
__________________
SMB-less as of 02/04/2012. Our savings account is richer, but our adventures are poorer.
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11-05-2012, 02:34 PM
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#35
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Senior Member
Join Date: Nov 2011
Posts: 1,715
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Send good vibes
He'll make it through. I know he will.
I copied his wife's post above and posted it on my FB page.
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11-05-2012, 07:20 PM
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#36
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Senior Member
Join Date: Apr 2012
Posts: 374
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Re: Send good vibes
Hope Jamie is doing better real soon. Good vibes sent!
Miss his input to the forum.
I was glad to meet Jamie at the Hungry Valley SMB gathering and have him ride with me on the 4X4 outing.
MORE GOOD VIBES
Don
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11-06-2012, 04:48 AM
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#37
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Senior Member
Join Date: May 2010
Location: Coastal South Carolina
Posts: 369
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Re: Send good vibes
I think most of us have gotten some positive input from Jamie!
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11-06-2012, 05:23 AM
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#38
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Senior Member
Join Date: May 2009
Posts: 1,837
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Re: Send good vibes
Prayers from The Ning and Rob
best
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11-06-2012, 09:00 AM
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#39
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Senior Member
Join Date: Aug 2010
Location: Taylor, Mississippi
Posts: 1,648
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Re: Send good vibes
No news this morning so far... maybe that's a good thing. I do know that Suzann has been receiving contact info for Hematologists (blood specialists) from around the country, including some pm's from the forum through me. I'm sure that all of the inflow is helping them, especially her.
All I can say to them is: Grab a root and growl! 
__________________
'95 SMB E350 Quigley 7.3
https://www.taylorarts.com
... If you have to ask, you'll never understand...
"... torpedo'd, because we don't generally cotton to bullshit around here." -jage
"... do they ooch apart in the night?" -Dia
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11-06-2012, 01:24 PM
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#40
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Senior Member
Join Date: Aug 2010
Location: Taylor, Mississippi
Posts: 1,648
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Re: Send good vibes
Good update, Brother Jamie is still growlin'!
"Hi all. Thank you for all your healing thoughts and prayers. I've written an update so you knew what was going on with my dear Jamie.
He is stable for now. He had a slight fever last might that he broke by himself. We are waiting to see how his bilirubin is, needs to decrease. He's not in imminent danger right now. Still bleeding some but less. Still in a coma. Hoping he starts to wake. His kidneys are very weak and everytime they try to put him on dialysis his bp drops. So they are going to put him on a continuous slow dialysis machine. It goes all the time instead of for 3 hours. His liver, kidneys and platelets need to recover from whatever the problem is. Unfortunately, they don't know yet...the cause and he's too weak for a liver or bone marrow biopsy. The thing I need most today is for his bilirubin to start coming down, his kidneys to start coming back online and of course for him to wake. Thanks for your love. Suzann"
__________________
'95 SMB E350 Quigley 7.3
https://www.taylorarts.com
... If you have to ask, you'll never understand...
"... torpedo'd, because we don't generally cotton to bullshit around here." -jage
"... do they ooch apart in the night?" -Dia
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